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Geek Culture / The Boy Whose Muscles Are Turning To Bone

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Yodaman Jer
User Banned
Posted: 15th Oct 2009 20:47
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Hello everyone,

I just read an article on MSN.Com about a young boy who has a very rare, deadly disease. You can it here. His name is Joshua Scoble and he's only three years of age.

The disease is called fibrodysplasia ossificans progressiva (FOP). I had no idea that such a disease existed. That's not surprising, seeing as there's only 700 cases confirmed world-wide.

Josh's parents have begun an organization to help find a cure (click here). I thought I would pass it on here, and hopefully somebody somewhere can help these people out.

And before somebody asks, no I'm not related to these people. I just want to help them out. Their child is only three. Please help if you can.

Thank you.

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lazerus
17
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Joined: 30th Apr 2008
Location:
Posted: 15th Oct 2009 20:49
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damm some are just born against the odds...

"I thought what I'd do was, I'd pretend I was one of those deaf-mutes, That way, i wouldn't have your problems"
http://lazerus-reborn.deviantart.com/
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Agent Dink
21
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Joined: 30th Mar 2004
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Posted: 15th Oct 2009 22:20
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That is a terrifying disease...

MISoft Studios - Silver-Dawn Gorilda is lost!

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tjaabee
18
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Joined: 14th Apr 2007
Location: somewhere
Posted: 15th Oct 2009 22:28
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Poor kid.

Best.

It's very good to know all links to Youtube that contain Rick-rolls. Sadly I don't.
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Zeus
18
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Joined: 8th Jul 2006
Location: Atop Mount Olympus
Posted: 15th Oct 2009 23:12
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That's awful.

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Yodaman Jer
User Banned
Posted: 15th Oct 2009 23:51 Edited at: 15th Oct 2009 23:51
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It is a truly terrible, horrifying disease. Please pass it on, even the smallest amount of a donation can really help out a cause.

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Inspire
18
Years of Service
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Joined: 23rd Dec 2006
Location: Rochester, NY
Posted: 17th Oct 2009 22:34
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So get this. I read this article, and updated my facebook status with my surprise about it. Turns out my friends aunt has it.

How awkward.

700 people diagnosed worldwide, and one of them is my friends aunt.

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Tom J
19
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Joined: 4th Aug 2005
Location: Essex, England
Posted: 17th Oct 2009 22:55
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Nasty, wouldn't that mean your heart would turn to bone?
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Yodaman Jer
User Banned
Posted: 17th Oct 2009 23:07
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@Inspire:

Youch.

@Tom J:

I suppose it would...that's horrible.

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Agent Dink
21
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Joined: 30th Mar 2004
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Posted: 17th Oct 2009 23:19
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I can imagine a heart attack would be devastating as the heart 'healed' itself into bone?!

MISoft Studios - Silver-Dawn Gorilda is lost!

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